Lots of people have questions on this topic, which I’m more than happy to help with if I can.
Il put a few common ones on here but anything else please comment on this page and I will then put the question on this page and answer it 🙂
How long did it take to decide to have the risk reducing surgery?
No time at all, once I knew I had the brca mutation it was a no brainier for me. I didn’t want to go through the same as my mum and have no control, I want to have kids and watch them grow up.
Once you decide to get tested how long does the whole thing take?
From finding out my results to my op was a year. And obviously i had apts before the results, it’s a lengthy process. So don’t keep putting it back if your thinking about it.
What’s the recovery period like?
It’s slow. But you get there. I was great after a month. But that really does depend on the type of reconstruction you have. Don’t push yourself and undo their hard work, ie blowing stitches.
How are the scars?
Not bad at all, faded brilliantly already . It depends on where they cut you and how you heal.
Can you feel your breast after wards?
Hmmm not really. They are pretty numb , but who cares I would rather numb boobs than cancer.
Can you breast feed?
No. Everything including milk ducts are taken out.
Will you stil need mammograms ?
No further screening is needed RE your breasts
What if I don’t qualify for NHS BRCA testing?
The criteria in the NHS is so strict, and unfortunately they won’t test everyone. I have spoken to lots of ladies who were refused testing and then went privately and it turns out they carry the gene. I think this is awful and the criteria needs to be re assessed.
A few links are below to private companies people have used for BRCA testing: